Thursday, March 3, 2011

One Week

until I find out if the cancer is gone! My PET/CT scan is Monday and then I'll get the results at the doctors on Thursday. To be honest Im dreading both. The best thing I can compare it to is being somewhere on vacation and not wanting the days to go by because then its back to reality. Thats what it feels like. So as I type this Im excited I still have 3 whole days before I go in for my test. Its been so nice to have these past 2 months off from all things cancer related.  I've tried not to think about it often...and just enjoy my days. Its not anything I could change...it's just been a waiting game.  A verse that has really helped with this is:
Matthew 6:34
Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.
So Im just taking each day as it is and enjoying time with my hubby and family!

While at Target with Nathan I saw this and thought
How true is this...I love it!

Tuesday, March 1, 2011

The Day I was Diagnosed with Cancer....

**This is long and I don't really expect anyone to read the whole post...I needed to put this in writing. I did this to add my journey journal**
** There is also a kind of graphic picture in this post...Just warning you :)

August 23 2010 will be a day I'll never forget......

I had surgery to take out what they thought was a cyst from my wrist on August 17.  Surgery for me went ok. I felt pretty good afterwards. But what I didn't know is what the doctor took out of my wrist was not normal...he told Nathan and my family while I was in recovery that it for sure wasn't a cyst but some sort of tumor. He showed them a picture of the tumor and one of them asked if it could be cancer. He said he didn't know. Nathan and my family kept all this from me because I just had my second surgery in a month and they didn't want to worry me.  Id already been going through enough with the ectopic pregnancy surgery I had just a month prior and the emotional sadness from the loss. So I didn't know anything. I knew they sent it off for pathology but I thought it was scar tissue from a previous cut.  This picture was taken the day I had my surgery. I look back at how naive I truly was to the situation.
Monday the 23rd of August came and it was time to go back to the doctors to have my stitches taken out. I remember laying in bed the night before and the thought crossed my mind..."what if it's cancer?"...I had known that they called it a tumor but that was it.  The thought scared me to the core so I quickly thought of something else.  The morning came Nathan helped me get ready and drove us since my whole arm was wrapped up.  We got into the room and Nathan immediately asked for the pathology results. The nurse unwrapped my arm and said she'd go check.  I sent my mom this picture of my wrist while we were waiting so she could see the damage. 
My doctor was Asian and did not speak the best English at all so he came and said to me "you're the famous one" I guess he had shown the tumor pictures to his colleagues and they all were so intrigued because they'd never seen anything like it.
He then left to call pathology because they still hadn't gotten the results back. He came back a few minutes later and I'll never forget the words that came next...he said "bad news...its cancer".  My body immediately got really hot...I felt like I was going to pass out. I looked back at Nathan and he was as white as a ghost. All I could say back to the doctor was "Ok". Nathan asked "what kind?" he said synovial sarcoma.  The doctor said he didn't know anything about it and gave us the number to an orthopedic oncologist at USC. I was numb...I couldn't talk, cry or  move.  All I wanted was to get out of that building so I could cry but I still had to get my 9 stitches taken out. The nurse came in to take them out...I think she was really nervous, she forgot to take out 3 of them (which we didn't realize until later) because she'd known what the doctor just told me. She said, "I'm sorry..I know that's not what you wanted to hear." I said "Ok" again. That's all I could muster up.  She finished taking them out...then she told me I'd have to get a cast put on because my wrist was completely restructured and I needed to protect my tendons.  So off we went to the cast room. It wasn't an easy walk...my legs felt so weak. I was still trying to hold it together.  I sat down the girl started to wrap my wrist.  Nathan called my Dad to see if he could meet us somewhere because we had to talk to him.  This was around noon and there was no way we could wait until my parents got off work. We didn't want to tell my mom anything because we didn't want her driving if she thought something was wrong.  Well she called my dad because she hadn't heard back from me. I was supposed to call her after my appointment.  He told her that he was meeting us and she told him she's be coming too. I think they both knew. Anyway back to the getting my cast put on. It was beige and I asked the girl if I could get any other color because I had to have this cast for 2 weeks and beige would get dirty so fast. She said "That's all we have...having a beige cast isn't that bad, things could be worse".  I know she didn't know that I was just told I have cancer 5 minutes ago but it felt like a punch in the stomach when she said that. All I said back was "Yeah, I know". (Nathan bought me red medical sports tape that night and wrapped it for me...such a sweetie) 
                                    
Finally we were able to leave but first we had to stop by the front desk to schedule a follow up appointment. Seriously I just wanted out of there. As soon as we got out of the building my eyes started to water and by the time we got to the car I was bawling. It felt very surreal. Like a horrible, horrible dream. We told my parents to meet us at a fast food parking lot and during the drive there God spoke to my heart and made his plan so clear to me. Our angel baby saved my life. He/She's time here on earth was so short and I'd been asking the Lord "why" and there was my answer right in front of me now. It was very comforting. He is so faithful! We pulled up to the parking lot and my parents were already there. They had worried looks on their faces. Once we parked they came over to my side of the car and asked "What's wrong? What is it?" All I could do was cry. I couldn't bring myself to say those words. My mom asked again "Ness, what is it?".  I said "Its cancer" and then we all started to cry.  We were devastated. Nathan was being so strong trying to figure out insurance issues and scheduling my appointment at USC and we were crying. Not saying a word...just hugging and crying.  I eventually told them that our baby saved my life. I know it. At this point I didn't know if the cancer had metastasized or not but I did know that God was working in my life through the recent troubles and his plan was becoming so clear.  While still in the parking lot I asked my mom to call our church to have our Pastor come pray with us. I needed the guidance,words and prayers of our Pastor. 
We finally left the parking lot and went to my Nana & Capas house. Capa was at work but Nana was there and the minute we walked through the door she knew something was terribly wrong. We told her and she was so sad and had such a hard time with it. It was so so so hard to see the pain and worry my diagnosis was causing on my loved ones because of this ugly disease called cancer and I knew it wasn't going to be or get any easier because we hadn't even told my brothers yet. We left Nana's and headed to my parents house. We told my brother, B, to meet at my parents and since he works with my Capa (Grandpa) they both came. When they got there we just hugged and cried. My other brother, J, was at school and when he got home I met him outside to tell him. We sat outside and talked and cried. I told them all not to worry that I was going to beat this and fight like they've never seen me fight before. I know that strength came from the Lord because I myself was terrified.  Pastor Mike (same one who married us) came over and prayed with us. He brought a prayer quilt and healing oil to bless me. I felt comforted.
After he left my mom got on the computer to send out a prayer request to everyone she knew. We had kept my ectopic pregnancy surgery secret between our immediate family members.  It was personal. But this wasn't going to be a secret we needed all the prayers we could get. This was going to be a battle and we needed prayer warriors.  My Aunt, Uncle & Cousin came over to just be there for us. We all went to dinner. We needed out of the house. I hadn't eaten anything all day and I still couldn't eat. I felt so nauseous. We spent the night at my parents but I don't think we slept a wink. So many thoughts were running through my head. Has it spread? How long have I had this? Will it kill me? Will I have chemo, radiation? etc.... 
That was one of the roughest days of my life. It was a truly trying day but with the support of Nathan, my family and most of all the Lord I got through that day and the 190 days since I was diagnosed with cancer. God is faithful and I know he's taking care of me. 

Jeremiah 29:11 - 
'For I know the plans I have for you,' declares the LORD, ' plans to prosper you and not to harm you, plans to give you hope and a future.' 

**If you've made it all the way to the end thank you so much for caring enough about my story to read this long post :)**

Thursday, February 24, 2011

2 weeks....

until I find out if the cancer is gone or not. Talk about being super anxious!!! I don't even know what to think. Since my journey started almost 9 months ago I've never known what to think. I have put all my concerns, care and trust in the Lord and have let him guide me through.  Somedays I think and feel this journey has been going on forever, other days it seems like just yesterday and somedays it feels like a complete dream.  I've learned so many different things but the biggest is just putting my complete trust in the Lord. Giving it all to him because he's the only one who knows the plan for my life, the reason I had the ectopic pregnancy and just one month later diagnosed with cancer. He knows why...I don't, Nathan doesnt, but HE does. He's working in me everyday. So as I wait these two weeks...I will continue to pray and he will continue take care of me :)

Sunday, February 20, 2011

Update....

Beautiful Sunset in Tennessee

We're back from Nashville and had a wonderful time.  Weddings are always so much fun because they bring so many people together that we don't see often. It was nice to take a break away and just relax and spend seven days straight with my hubby (he works a lot).
Nathan & I with the bride (his sister) and groom!

I finally scheduled my PET/CT scan..I guess I had been procrastinating because I'm scared. But it is scheduled for March 7 at 8:30am and I will get my results at my doctors appointment on March 10 at 10:45 am.  Please keep me in your prayers!

I am working on a post about the day I found out about the cancer and the few days following. This is my journal and as not fun and sad as those days were I want to remember the details...its part of my story and part of my journey.

Tuesday, February 15, 2011

Nashville

We're in Nashville for Nathans sisters wedding. We've been here for almost a week. That is why I have updated the blog...Its been really nice to get away and enjoy each other. This is the first real vacation we've taken since this all started.  Only about 2 weeks until my PET Scan. Please keep praying!

Sunday, January 30, 2011

Sarcoma Awareness

...is something I want to be a part of but Im just not ready.  Im not ready to know the stats, to see other patients, to be a part of something I truly know nothing about.  Since I was diagnosed on August 23,  I have never once googled or looked up synovial sarcoma, sarcoma, cancer, chemotherapy, radiation or anything that has to do with my diagnosis. I didn't want to know stats, I didn't want to hear about someone else's story, I didn't want to hear how hard or not hard treatment was going to be. I wanted to take my journey as my own with out any "internet influence". The things I do know about my diagnosis and all the went/goes with it is from my doctors and thats it. The internet can be scary and I didn't want that. I wanted to be naive about the situation I was in and just hope and pray for the best and that is what I've done. Eventually I want to be part of a movement to raise awareness of Sarcomas because its ugly, scary and not fun.

One day I'll be ready.....

Tuesday, January 25, 2011

Sad Realization....

I try to always be positive but this is something that truly bothers me and makes me sad.

For those of you that don't know my husband, Nathan, is a nurse. I am a very proud wife that my husband has such a selfless profession. Anyway because of this he has had many patients whose families have donated organs once they know there is no longer hope for a meaningful life or survival. This is something I feel very strongly about and the other day Nathan & I talked about it because he wanted to make sure there isn't a question or hesitation if we're ever faced with this decision. I told him I want my organs to be donated and then we both got quiet and I told him, "they probably don't want or will not be able to use my organs".  It made me very, very sad and something I hadn't even thought about until a few days ago. Stupid cancer!!!! I did some research about it today and depending on each cancer & case certain body parts (skin, eyes, etc)  can still be donated but organs aren't likely. I know that once my spirit goes to heaven there is nothing left but a body and I want it to help others in anyway it can.   

They said to still continue to check donor & let the Doctors make the decisions
So I will always be a donor and very proud of it :)

Sorry for the sad post but this is my journal of my journey and this is part of it, its what Im feeling and thinking...I'll be back again soon with something more uplifting :)